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Just Diagnosed With A Rare Disease? Here’s A List Of What To Do Now

So you’ve just been told you have a rare disease. Feeling overwhelmed? That’s okay and honestly, expected when it comes to being diagnosed with any condition – especially one that

What To Wear To Your Doctor Appointment

Have a doctor’s appointment coming up? It’s almost like a first date in some respects. You don’t really know if this will be a one time meet or one that

20 Places To Put Your Chronic Collective Stickers

Putting Stickers on your items can be a fun way to express yourself and what is important to you! They can encourage you, make your items stand out, spark conversation

Top Medical Shows To Watch When You Are Undiagnosed

When you are undiagnosed and it feels like no one is able to figure it out, one thing a patient can do is educate and research conditions it could be.

7 Things You Can Do To Support Your Friend With A Chronic Condition

Being diagnosed with a chronic condition can completely change a person’s life. Trying to come to terms with this new reality and everything that it brings can be so difficult

6 Ways To Get Involved On Rare Disease Day

February 28th is Rare Disease Day! A day where the those of us in the rare disease community come together to raise awareness about rare diseases and how they impact

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